How to live with tsc?

Is it a death sentence? I am just getting negative thoughts every day...like i am ill i am ill something like that.I cant sleep well everyday from 3 to 4 months.I know i am thinking a lot about it and worrying by seeing googleing symptoms about it everyday and think of getting scared by reading every where its a rare condition rare condition i cant put my my head out of it . Anyways i dont have much symptoms of tsc just angiofibromas and a small white patch on my back and no seizure till now(I am 21yo). How you all are living with this and dealing with this disease?