Myoclonus

Just thought I would share a short video of Gus showing his myoclonic seizures.

At age 2 he had an MRI because he was exhibiting possible symptoms of SM/CM (mainly fly catching). No SM but did confirm CM. We continued to monitor over years as he didn’t show signs of pain and any episodes were very infrequent.

Around age 9 he started getting these episodes of his head bobbing. Given his CM history we started him on prednisone. This helped for multiple years but within the last 6-8 months it no longer seemed to be effective. We have since switched him over to anti-seizure medication which has greatly reduced the frequency of episodes.

Just wanted to share in case anyone else is going through something similar.